Family caregivers in Quebec : identification and needs

Background

According to the «General Social Survey on Care Given and Received» conducted by the Institut Statistique du Québec, some 1,675,000 Quebecers aged 15 and over were family caregivers in 2012.

This data must be updated. Who are the family caregivers in Quebec today? How many are there? Do they recognize themselves as such?

Are they long-term caregivers of chronically ill loved ones or short-term caregivers? Are they caregivers of elderly people, children, relatives with disabilities, loved ones with neurodegenerative disorders or mental illness?

Objectives

  • Identify and characterize caregivers to develop a provincial mapping
  • Measure the health status and quality of life of caregivers to raise their awareness of their own condition and identify areas of personal vulnerability to be observed

Methods

Since 2016, the Centre of Excellence on Longevity has created and operates an Internet platform for health professionals to improve the care pathway for seniors and family caregivers.

This platform, called CESAM, will be accessible to the general public throughout Quebec in the spring of 2019.

The family caregiver must be identified, accompanied and followed up. To do this, he must himself consider that he needs help and get involved in his own health.

In this perspective, the Centre of Excellence on Longevity will make CESAM available free of charge to family caregivers of all ages, who will thus have access to simple and scientifically validated tools and questionnaires to assess their own quality of life and state of health. CESAM will make it possible to identify family caregivers, establish their socio-demographic profile, assess their needs and give the keys to better support them and help them to help.

Prospects

Assess the well-being, quality of life and health status of caregivers in order to improve their health and possibly increase their longevity for the benefit of all,

Organize an epidemiological watch to be able to predict the pathological aging of Quebecers

Anticipate the needs of family caregivers throughout the province and match them with the necessary resources.